The 20 Best Koolen De Vries Syndrome Doctors Near Me in Saint Paul, MN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 89 doctor with experience in Koolen De Vries Syndrome near Saint Paul, MN. Of these, 76 are Experienced and 13 are Advanced.

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89 providers found
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Gillette Children's Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Kevin Sheridan is an Endocrinologist practicing medicine in Saint Paul, Minnesota. Dr. Sheridan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Osteogenesis Imperfecta, Neurohypophyseal Diabetes Insipidus, Diabetes Insipidus (DI), and Osteopathia Striata Cranial Sclerosis.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology

    South Metro Human Services

    166 4th St E, 
    Saint Paul, MN 
     (0.5 miles away)
    Languages Spoken:
    English

    Anne Weisensee is a Pediatric Radiologist practicing medicine in Saint Paul, Minnesota. Dr. Weisensee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Knock Knees, Legg-Calve-Perthes Disease (LCPD), and Ascites.

    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics

    Twin Cities Spine Center

    913 E 26th St, Suite 600, 
    Minneapolis, MN 
     (8.4 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Perra is an Orthopedics provider practicing medicine in Minneapolis, Minnesota. He has been practicing medicine for over 25 years. Dr. Perra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Frontonasal Dysplasia Klippel Feil Syndrome, Spinal Fusion, and Microdiscectomy. Dr. Perra is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Tenner Guillaume is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Guillaume is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Scoliosis, CHARGE Syndrome, Wildervanck Syndrome, Spinal Fusion, and Gastrostomy.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English, Hindi, Kanarese, Marathi
    Accepting New Patients

    Supreet Deshpande is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Spasticity, Cerebral Palsy, Moebius Syndrome, CHARGE Syndrome, and Rhizotomy. Dr. Deshpande is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Walter Truong is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Truong is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Osteogenesis Imperfecta, Wildervanck Syndrome, Osteotomy, and Spinal Fusion.

    Advanced in Koolen De Vries Syndrome
    General Practice
    Advanced in Koolen De Vries Syndrome
    General Practice

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Danielle Harding is a General Practice provider practicing medicine in Saint Paul, Minnesota. Dr. Harding is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Cri-Du-Chat Syndrome, Trisomy 12 Mosaicism, Trisomy 2 Mosaicism, and Trisomy 3 Mosaicism.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Angela Sinner is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Sinner is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Alternating Hemiplegia of Childhood.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Amy Authement is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Authement is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Osteogenesis Imperfecta, Spastic Diplegia Infantile Type, and Moebius Syndrome.

    Advanced in Koolen De Vries Syndrome
    Physiatry | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Physiatry | Pediatrics

    Gillette Childrens Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lee Schuh is a Physiatrist and a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Schuh is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Hydrocele, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Schuh is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Daniel Miller is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Miller is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Wildervanck Syndrome, and Koolen De Vries Syndrome.

    Advanced in Koolen De Vries Syndrome
    Endocrinology
    Advanced in Koolen De Vries Syndrome
    Endocrinology

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Lauren Yauch is an Endocrinologist practicing medicine in Saint Paul, Minnesota. Dr. Yauch is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Short Stature (Growth Disorders), Addison's Disease, and Idiopathic Short Stature (ISS).

    Advanced in Koolen De Vries Syndrome
    Plastic Surgery
    Advanced in Koolen De Vries Syndrome
    Plastic Surgery

    HealthPartners Specialty Center - Plastic And Hand Surgery

    401 Phalen Blvd, 
    Saint Paul, MN 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ruth Barta is a Plastic Surgeon practicing medicine in Saint Paul, Minnesota. Dr. Barta is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Cleft Lip and Palate, Velopharyngeal Insufficiency, Metopic Ridge, Myringotomy, and Septoplasty. Dr. Barta is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
     (0.9 miles away)
    Languages Spoken:
    English

    Deana Thomasson is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Thomasson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Koolen De Vries Syndrome, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, PIK3CA-Related Overgrowth Spectrum, and Neurogenic Bowel.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist practicing medicine in Minneapolis, Minnesota. Dr. Lohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Cornelia De Lange Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Gillette Children's - Hospital And Clinics

    640 Jackson St, 
    Saint Paul, MN 
     (0.3 miles away)
    Languages Spoken:
    English

    Stephen England is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. England is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Beukes Familial Hip Dysplasia, Chondroblastoma, Chondroma, and Hypoplasia of the Tibia with Polydactyly.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Temple Syndrome, and Tetrasomy 9p.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Debbie Song is a General Surgeon practicing medicine in Saint Paul, Minnesota. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Syringomyelia, Syringobulbia, Chiari Malformation Type 2, Dandy-Walker Syndrome, and Laminectomy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Andrew Georgiadis is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Georgiadis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Congenital Femoral Deficiency, Knock Knees, Spastic Diplegia Infantile Type, Rhizotomy, and Osteotomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Marshall Taniguchi is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Taniguchi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Moebius Syndrome, Cerebral Palsy, Spastic Diplegia Infantile Type, and Myotonia Congenita.

    Showing 1-20 of 89

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Saint Paul, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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